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Imperfections Are Perfect.

For the #WondertheWorld contest.
This is a true story and this is my life.

***

We all have a story.

Some are bad.

Some are good.

Some are sad.

And others are....

Different....

Hi my name is Harlie and I have brothers in wheelchairs.

Your probably thinking that they are twins, right?

Well your wrong....

They are two different people.

Two different ages.

Two different personalities.

With the same problem.

They are both in wheelchairs, and have the same syndrome.

Their names are Kody, and Nicholas (Nick, for short.)
Kody is 19 almost 20 and Nick is 10 almost 11.
Kody was born July 1, 1997.
Nick was born July 11, 2006.

Now what they have is very rare, it is called (MASA/CRASH Syndrome). It is basically a whole bunch of medical problems rolled into one.
I will not tell you what it is exactly because it will take a lot of explaining, so I will just stick with what they can and can not do.

Kody and Nick can not talk, walk, go to the bathroom, or even think for them selves.

They are almost completely dependant.

What they can do is eat, and drink, by themselves.
Nick can somewhat talk, and crawl.
Kody can not talk or crawl.

For as long as I can remember I have been helping my mom with my brothers, of course Kody is older than me, so for over 4 years my mom did stuff by herself, and with no husband, I can guess it was difficult for her.

I think when I first started to help I was around the age of six or seven, now that may seem like alot for such a young girl, but it really wasn't.
I wanted to help, and I wanted to know and learn about them.

And that is what I did.

I helped and I went with my mom to all the doctor appointments.
Any place that my brothers went, I followed.
I even became home schooled, because it was easier than missing school.
I still am home schooled, but that is beside the point.

Kody and Nick get treated very differently than most.

They get judged all the time, and people treat them like they have the plague.

I always say that it's ignorance, and disrespect, but we can't fix ignorance, so my family and I try to make the best out of life.
We do stuff that normal family's do and we go all sorts of places.
We are not a normal family but to me normal is overrated.

I love my family and I love my brothers.

My brothers might not be your normal everyday kids but they are the best siblings I could ever ask for. Without them I would probably not be the person I am today.

This might not be the kindness you all know of, but to me helping someone in need is true kindness.
If I can make someone laugh, or smile, that is kindness.

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